July 22, 2015 Wednesday Afternoon

Saw my HIV doctor today and got my latest blood results.  My TCell count has gone down a bit but that could be very well due to the Prostate infection I have and had at the time.  My percent of good cells is about the same.  I am undetectable which is the goal.  Doctor is very happy with my blood work but was not happy with my Prostate problem and how it has progressed.  I explained how my day starts to my HIV doctor like this:

I wake up around 5:30 AM when the other half rolls out of bed.  I then lay in bed for about and hour sweating like crazy with cold chills until I can no longer be in bed.  At 6:30 I then get up dripping wet to feed the dogs.  As I am feeding the dogs I am usually throwing up or gagging into the sink to get the bile out that makes me feel like throwing up for the first two hours of my morning.  I get the dogs fed just in time to run to the toilet for an explosive bowel movement.  I can not even have a sip of coffee for the first hour due to the feeling of throwing up.  I also explained that if I have one good day like I had yesterday, I then pay the price like I am today, tired, feeling like crap, and just want to be in bed.  He was not concerned since he has seen worse and said we had talked about this before.  All part of being HIV and AIDS.  He did think we need to address the Prostate issue and asked me to call my Prostate doctor to get a CT scan and then an appointment with the actual doctor, not just his nurse.  My Prostate doctor reminds my of the Wizard Of OZ.  I have never seen him, only his nurse.  Not sure what you have to do to actually see the doctor.  I did just leave a message with the nurse requesting a CT scan and an appointment after with the doctor for the results.  I also for the past week have felt gassy.  Horrible gassy.  I have been eating about 12 gas x's a day during the course of the day.  My HIV doctor seems to think the tiredness and stomach problems might all tie into the Prostate and we need to get the infection under control.  So now I wait for the nurse to call and most likely tell me something different.  At that point I am not sure what I will do because I am very uncomfortable between the gas and the pain.

As I mentioned earlier, yesterday was a good day.  I got through the first hours and then was able to do 2 miles on the treadmill.  I walked Casper and Bo around the block early morning.  I made grilled cheese sandwiches for Tony when he came home with Rose for lunch and then went for a nice walk in the river trails.  Didn't even take a nap.  I was sleeping by 9 PM exhausted.   So now today I pay the price of doing all that.  One good day, one bad day seems to be my life story lately.

Wish I felt better because we do have a busy weekend coming up with block parties and bike races throughout the neighborhood.  Also a big air show that we can see since we are so close to the lake front where the show is held. 

So there it is.  The HIV meds are keeping me alive, but my body feels like it is giving out.  My Prostate is as bad or worse and I have no clue where I go from here.